![]() Dupuytren doesn’t just affect hands Dupuytren affects people, their lives, their families. Here is the good news: You can help for free! Help raise awareness by sharing your story. We’ll use the results to refine the number of blood tests and reduce costs of future tests. It’s the first chapter in the book about the end of Dupuytren disease. Expensive: this is not a run-of-the-mill test panel for an annual medical check-up. Extensive means expensive: laboratory costs for this first round of blood tests will be close to $4000 per person. This is a pilot survey, so we’re doing extensive blood tests on a small sample of enrollees. We’re about to launch the first wave of blood tests for the International Dupuytren Data Bank. We have to raise awareness because we need more people to enroll in research and because we need to fund this research. Dupuytren isn’t a familiar word because people don’t talk about it. The reason that the word isn’t familiar to many isn’t that it’s hard to pronounce: it’s not. In Denmark, it’s called Kuskefingre (Coachman’s finger) because Dupuytren’s first description involved the fingers of a man who drove a horsedrawn coach – a coachman. It’s hard to spell and strange to pronounce (DOO-pa-tren) – and not just for English speakers. In English, the word Dupuytren is unfamiliar.
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